iPad Enabled Questionnaire Helping Clinicians Understand the Interplay Between Lifestyle and Inflammatory Bowel Disease -Tickit®
Isseman, R. and Odeh, S.V
McMaster Children's Hospital, Hamilton ON, Canada. Department of Pediatrics, McMaster University, Hamilton ON, Canada.
Lifestyle and health powerfully influence quality of life among children/teens with chronic disease. We studied the use of Tickit®, an iPad enabled HEADSS interview in paediatric Inflammatory Bowel Disease (IBD) patients.
Conducted on patients attending the McMaster Children’s Hospital IBD clinic.
- 53 patients with ulcerative colitis and Crohn’s disease
- 31 males and 22 females (8-17 years) mean age= 14.9 years
Participants were approached at registration by the research coordinator and given an iPad questionnaire prior to seeing the attending clinician.
- 100 % agreed to participate
- 96.2 % were comfortable with the questions and found them easy to understand
- 98.1 % found the electronic platform easy to use
- 100 % completed the questionnaire
- 92.4 % of participants thought the survey would be helpful to doctors and nurses caring for them
Note: Questionnaire administration did not impact clinic visit time.
6 participants indicated thought about ending their lives during the prior 3 months to participation (11.3%) and 6 participants provided history of self-harm (11.3%) The clinic’s social worker was notified and engaged these participants.
A total of 84.9% of participants show a positive outlook towards education.
- 7.9 hrs./week doing physical activity
- 4.4 hrs./day using electronic devices for entertainment purposes
Participants whose mood was described as ‘Great’, also stated that their health was ‘Great’ at the time of participation (pMood=0.0722, pHealth=0.0999, p<0.05; q=4.218
Participants who believe that they had healthy body weight also held positive feelings towards their body appearance (pBodyWeight=0.0658, p Feelings=0.0788, p<0.05; q=4.604, 5.180)
Knowledge about Transition
Despite considerable efforts at educating patients about their transition most participants did not know where they would receive medical care for their IBD past the age of 18, (63.3%) vs. the 36.7% who answered they would be seeing an adult specialist.
The use of an interactive electronic platform is practical and effective in confidentially obtaining information from young patients. Most of the patients appear happy and well adjusted, a minority were sad, depressed and at risk, findings which underscore the interplay between lifestyle and IBD in the pediatric age group.